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The Caregiving Trap: Solutions for Life's Unexpected Changes Kindle Edition
The Caregiving Trap provides recommendations for exhausted and frustrated caregivers. Advocate, care navigator, and caregiving educator Pamela D. Wilson shares stories from her personal and professional experience that will help you navigate the challenges of caring for a loved one and help you replace feelings of guilt, sadness, and fatigue with calm and certainty.
In The Caregiving Trap, you’ll get step-by-step exercises to help you through common issues, such as:
- A sense of duty and obligation to provide care that damages family relationships
- Emotional and financial challenges resulting in denial of care needs
- Ignorance of predictive events that result in situations of crises or harm
- Delayed decision making and lack of planning resulting in limited choices
- Minimum standards of care supporting the need for advocacy
“Pamela Wilson . . . offers a toolbox of strategies to help the caregiver move forward with foresight, knowledge, and skills to plan for the future.” —Tina Wells, MA, Alzheimer’s Association Colorado
“A must read not only for any health professional interacting with the elderly and disabled individuals but also for any adult who could possibly find themselves in a caregiving situation or the recipient of caregiving now or in the future. Pamela’s personal and professional experience, along with extensive research, offers a compassionate, perceptive and detailed resource. Familiar scenarios, probing questions, and realistic options are presented, all with the end goal of better quality of life for both the recipient of care and the caregiver.” —Linda Warwick, RN, hospice and alternative therapy practitioner
- LanguageEnglish
- PublisherMorgan James Publishing
- Publication dateMay 30, 2015
- File size4.5 MB
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Editorial Reviews
Review
Today is the time to make connections with our parents before time passes. Time also for the conversation of care, years before care is needed.” Pamela Wilson asks the reader to appreciate the fragility of life by valuing our relationships, and to take a proactive stance by realizing that how we live now will shape the future as we age. She offers a toolbox of strategies to help the caregiver move forward with foresight, knowledge, and skills to plan for the future. ---Tina Wells, MA, Alzheimer’s Association Colorado
Pamela Wilson has provided us with an information-rich, enormously detailed and practical, very deeply personal, and even fearless exploration and understanding of the all-too-often simply overwhelming care-giving process. It will be a book---like her practice phone number---that I keep within close reach in my own office, and imagine sharing with patients and their families for years to come. ---Jay Schneiders, PhD., ABPP, Clinical Neuropsychologist & Health Psychologist
There is a phrase from Pamela Wilson’s new book "The Caregiving Trap" that says it all: “Logic is absent from many caregiving situations as emotions take over the driver’s seat.” Being a nurse who has been a caregiver for over 40 years, I wish I had found Pamela’s book much earlier in my life. Caring for elders is a special skill. Over the last 15 years while caring for my own aging parents, I have encountered absolutely wonderful, patient souls who clearly have a gift with this population. But the trick for the rest of us is to listen to these knowledgeable folks. Pamela is an expert who has provided heartfelt, concrete advice to guide others through this challenging process. ---Patricia A. Herlily, Ph.D., R.N., Rocky Mountain Research
No one is more experienced or knowledgeable in helping caregivers and care recipients than Pamela Wilson. Pamela is an educator and a professional caregiver. She knows what works and her advice is more than theory, it has been tested in practical application. ---John J. Horan, CMSP/CFSP, Horan & McConaty
This book is a must read not only for any health professional interacting with the elderly and disabled individuals but also for any adult who could possibly find themselves in a care giving situation or the recipient of caregiving now or in the future. Pamela’s personal and professional experience, along with extensive research, offers a compassionate, perceptive and detailed resource. Familiar scenarios, probing questions, and realistic options are presented, all with the end goal of better quality of life for both the recipient of care and the caregiver. ---Linda Warwick, RN Hospice and Alternative Therapy Practitioner
About the Author
Find out more at: pameladwilson.com
Excerpt. © Reprinted by permission. All rights reserved.
In the box were the front pages of greeting cards with pictures of flowers, wheat fields, and open prairies; the other half that would have contained a greeting or signature was cut off in a jagged path by sharp scissors. Hidden inside the bottom of the box, were a wrinkled handkerchief embroidered with the initials SH and a pink crystal rosary. Absent from the box was a ring of purely sentimental value that was on her hand the last time I saw her, but not with her at the time the funeral home staff arrived to pick up her body. The missing ring was never found. An employee of the nursing home likely slipped the ring off her finger just prior to or after her death. These few belongings were all that remained of Sarah’s life, and I was the only interested party available to collect them.
Sarah’s death struck me as significant and melancholy. Sarah lived to the age of eighty-seven. There was no one except me to mourn her passing or to shed a tear, no one except me to know or care where Sarah was buried or to visit her burial place to acknowledge the life she had lived. Cemeteries are filled with stones bearing the names of people who no one visits. My clients tell me that their greatest fear is not dying but the fear of dying alone. It disturbed me that Sarah’s presence on earth was memorialized by material belongings in a solitary cardboard box that now belonged to me. I wanted to believe that life---that all of our lives---offer some legacy to a world that we may no longer inhabit.
Holding the cardboard box of belongings gave me a better understanding of the isolation that many individuals experience in the latter years of life. While many of us take for granted frequent emails or phone calls from friends or the ease of going shopping or joining groups of friends, for many older adults advancing age and poor health prohibit participation in these activities. “People with stronger social relationships have a fifty percent increased likelihood of survival than those with weaker social relationships.” Having friends and participating in social activities has a positive impact on quality of life. Older adults become isolated due to loss of friends or family, limited physical mobility, and reduced income that restricts participation in activities like going out for dinner with a friend or joining an interest group. Social isolation and loneliness negatively impact quality of life in many ways that include poorer health, increased medical expenses and moving to a community of care much earlier than expected.
Today, families are spread across great distances. When older family members age and become isolated, family is many times unaware or uninvolved of daily struggles or health challenges. I know this to be personally true. This past holiday season I learned of the passing of an uncle who lived at a distance. Because contact with my uncle and aunt consisted of written cards and visits every several years I had no idea my uncle’s health had declined and would have not known of his passing if his niece had failed to respond to my holiday card. As a result of receiving a note in the mail, I had a wonderful telephone conversation sharing memories of my uncle with his niece, who knew of me but whom I had never met in person.
Sometimes it takes great loss before we are fully able to understand the value of human connection. Life passes with time and we age. Remaining connected to family is important even if contact is by email or phone. If you doubt the human desire for connection, look at the popularity of Facebook and social media and the way these allow connection to those in our present and in our past. We seek to connect even if the connection is through the convenience of a computer and the Internet.
Product details
- ASIN : B00XZM2MQ0
- Publisher : Morgan James Publishing
- Accessibility : Learn more
- Publication date : May 30, 2015
- Language : English
- File size : 4.5 MB
- Screen Reader : Supported
- Enhanced typesetting : Enabled
- X-Ray : Not Enabled
- Word Wise : Enabled
- Print length : 313 pages
- ISBN-13 : 978-1630475369
- Page Flip : Enabled
- Best Sellers Rank: #1,220,355 in Kindle Store (See Top 100 in Kindle Store)
- #184 in Physician & Patient Caregiving
- #333 in Eldercare
- #1,573 in Aging Parents (Books)
- Customer Reviews:
About the author

PAMELA D. WILSON is a caregiving expert, advocate, and speaker offering support to family caregivers and professional caregivers through her business of the same name. Since 1999, Pamela has been a business owner providing direct service to families, individuals, caregivers, health and care providers, attorneys, and financial planners in the areas of care management, care navigation, caregiving services, caregiver support, elder care, legal and financial appointments and estate administration.
Throughout her caregiving career, Pamela has provided education and training, advocacy, and support for family and professional caregivers. Today caregiving education, training, advocacy, speaking, and caregiver support are the main focus of her business. As the result of the aging population and increase in need for family caregivers—nearly 4 in 10 Americans are caring for a loved one—it is critical that family caregivers are knowledgeable about options, plan for care, and advocate for care needs. The increase in diagnoses of chronic disease, dementia, and Alzheimer’s disease strains the ability of family members—many who became caregivers as the result of an unexpected crises— to provide daily support, navigate the care system, and to plan for future needs.
Professionals in healthcare, care agencies, care communities, and in the legal, and financial professions have a similar desire to be knowledgeable and to serve as a resource for family caregivers. Due to the specialization required in these industries and the day to day job demands, it is difficult for professionals to advise beyond the specialties in which they operate. Pamela’s expertise in the industry since 1999 provides the opportunity for professionals working in the industry to expand knowledge beyond their day to day specialties through training and education programs offered by Pamela.
Information, education, and support is offered through The Caring Generation Library®, through Pamela’s book, The Caregiving Trap: Solutions for Life’s Unexpected Changes, articles, podcasts, webinars, online support groups, speaking and training. She produced and hosted a radio program on 630 KHOW-AM in Denver called The Caring Generation®. Pamela continues to develop programming and education on topics to support family and professional caregivers. Pamela is a member of professional associations focusing on estate planning and elder care, financial and estate planning, caregiving, aging, and healthcare.
Pamela’s work has been applauded within the caregiving community because she has walked in the same shoes, and experienced the same frustrations as the professional caregivers and family members she serves. When she was 35, Pamela lost her mother to cancer and her father died a few years later. Soon after her older brother passed away, and by the time she was 40—Pamela had lost fifty percent of her immediate family. Rather than view these challenging circumstances as a tragedy, Ms. Wilson viewed them as an inspiring catalyst to answer the call in her heart to serve and help other caregivers.
To learn more about Pamela D. Wilson and gain access to the wide range of resources she has made available, please visit:
PamelaDWilson.com
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- Reviewed in the United States on July 23, 2015It isn’t surprising that the majority of caregivers are women. My own mother was a caregiver with two young children and working full-time. I don’t have any experience with caring for an elderly relative, but hearing my mother’s stories as been both a guide and inspiration. What I found was that most people don’t discuss the hardships of caregiving. Many times, other family members don’t even empathize with the caregiver. Thus, taking advantage of the situation by acting like it is not their problem.
In this book, the author makes a point to emphasize that caregivers must look after their own well-being too. Who else is going to take care of the caregiver then? It is also important for caregivers to have their own separate lives as well. This provides for better quality care and enjoyable atmospheres. After all, caregivers are human beings and not machines!
I wasn’t aware of the staggering costs of nursing homes and rehabilitation centers. In my opinion, this is scandalous! Unlike other countries, our government doesn’t have comprehensive care that offsets the costs of living in retirement communities, nursing homes, and rehabilitation centers.
With the increasing percentage of people over 65 years of age, affordable standards of living have to be addressed. We must also take into account other factors such as domestic violence and education of healthcare workers. At the end of Chapter 9, there are the stories of Arnie and Mary. Arnie hated being a caregiver, while Mary loved it. If we are able keep moving forward than we can progress in the field of caregiving. Life is a circle. One day we are the caregiver, and the next day we are the care recipient.
I received a free copy of the book in exchange for an honest review.
- Reviewed in the United States on September 28, 2015The Caregiving Trap by Pamela D. Wilson is a great guide to help navigate your thoughts and decisions when deciding to be a caregiver. There are so many concerns and things to worry about when it comes to being a caregiver- either to an aging parent, spouse, or child. This book breaks down all the questions that you may have, what you can expect, and who can help you. She lays out care options to support caregivers. She discusses the unexpected challenges or unexpected traps that your lack of knowledge can lead to a dangerous situation.
Reading this you will feel better informed to make decisions. She stresses "questioning medical diagnosis, questioning the needs of surgery, or even making sure that you have a clear understanding on the recommendations, benefits, and risks." Asking about the prognosis and outcomes and pressing the physician for answers. If you do not feel up to the task, then she informs you on the responsibility and idea of a care navigator which will navigate all of this on your behalf and that of your loved one. These people are equipped with the knowledge to ask the right questions and make sure that the patient is not being lost in the shuffle.
This book is filled with all that you could think to ask a loved one about their care, as well as caring for your own needs emotionally and physically because this can and will take a toll if you decide to be a caregiver. I think that everyone should read this book and then talk with family about the situation and concerns and worries.
I received a copy of this book in exchange for an honest review.
- Reviewed in the United States on October 4, 2015I received a copy of this book in exchange for an honest review.
As someone who has spent a large amount of time as a caregiver for my grandparents, I found much of what Wilson said to be fairly accurate. There is a great deal to be said about the difficulties involved with caring for family members. I feel as though the saying, “you can’t please everyone all the time” rings very true as a family caregiver. And, as Wilson points out, family caregiving is often a thankless job with ever-increasing responsibilities.
With that said, I agree that there are benefits to having a care navigator, but it isn’t realistic for every family. In the case of one of my grandmothers, money was very tight and she was estranged from most of her family. Luckily, we had the important “what if” conversations regarding her end of life care before they were necessary so I knew what she wanted. I feel as though her wishes were upheld. However, I can see the benefits of a care navigator working well for someone who doesn’t have someone to speak on his or her behalf.
Much of Wilson’s book focuses on how to hire and have a care navigator advocate for the care recipient in your life. Luckily, the examples provided do help even if you cannot afford to have a care navigator as an advocate.
Wilson does bring up and explain how being a caregiver for a family member can grow. What starts off small, like grocery shopping, can quickly escalate to chauffeuring to all appointments, cooking, cleaning and so much more.
What would have made this book better would be more information on how to deal with caregiving if hiring a care navigator is not an option. I would recommend this book to anyone who might find themselves in a caregiving situation in the future. It doesn’t necessarily provide an easy way out, but you can learn some coping mechanisms to help with future familial obligations.