Review
"In 2030, we’ll look back at this book as the first to document the most compelling change ever to occur in healthcare. Participatory Healthcare combines the facts, figures, trends and market forces driving person-centered health with the heart and soul of the patients who are leading this movement. I’ve made it required reading for all at WEGO Health, and it’s a must for every stakeholder in healthcare."
-Jack Barrette, CEO, WEGO Health
"Participatory Healthcare, edited by Jan Oldenburg with Associate Editor Mary Griskewicz, could become the defining textbook of our field – the new cornerstone of our movement… This book is a fitting continuation of Tom Ferguson’s legacy: by reframing the discussion around the role of patients in healthcare, it makes the case for a world-changing paradigm shift in our approach to patient care. Participatory Healthcare provides exactly what we need: conceptual essays and pragmatic stories that demand to be heard. I very much hope you’ll read it, from cover to cover."
-Dave deBronkart, Cancer survivor, co-founder and chair emeritus, Society for Participatory Medicine
"In 2030, we’ll look back at this book as the first to document the most compelling change ever to occur in healthcare. Participatory Healthcare combines the facts, figures, trends and market forces driving person-centered health with the heart and soul of the patients who are leading this movement. I’ve made it required reading for all at WEGO Health, and it’s a must for every stakeholder in healthcare."
-Jack Barrette, CEO, WEGO Health
"Participatory Healthcare, edited by Jan Oldenburg with Associate Editor Mary Griskewicz, could become the defining textbook of our field – the new cornerstone of our movement… This book is a fitting continuation of Tom Ferguson’s legacy: by reframing the discussion around the role of patients in healthcare, it makes the case for a world-changing paradigm shift in our approach to patient care. Participatory Healthcare provides exactly what we need: conceptual essays and pragmatic stories that demand to be heard. I very much hope you’ll read it, from cover to cover."
-Dave deBronkart, Cancer survivor, co-founder and chair emeritus, Society for Participatory Medicine
From the Back Cover
Healthcare Management - Process Improvement"Jan was a pioneering force for patient engagement well before the phrase became part of legislation or went mainstream. Her passion for putting people at the center of their care is the driving force behind the stories and knowledge shared in this book. It will inspire, inform, and energize readers who value patients' growing role in DIY healthcare."
JaneSarasohn-Kahn, Health Economist and Advisor, THINK-Health and Health Populi blog
"This book contains the keys to transforming our healthcare system from one in which patients are receivers of care to one in which they are collaborators in care."
--Paul Kleeberg, MD
"This book inspires hope for change. Reading the poignant patient and caregiver stories in this book makes the need for change to a more participatory healthcare system personal. I urge each of you, after reading this book, to get involved in this exciting transformation."
--Daniel Z. Sands, MD, MPH
Written through the lens of healthcare experts, patients, caregivers, and families, Participatory Healthcare: A Person-CenteredApproach to Healthcare Transformation highlights new models of interaction between providers and patients. The book envisions a new approach to healthcare in which patients and caregivers are respected and welcomed as partners in designing and managing care, where technology supports and enables both more convenient and more personal experiences for providers, patients, and families.
The book begins with essays from those working inside the system to make it more patient centered and convenient. The essays emphasize best practices and case studies reinforced with clinical research underscoring outcomes others have attained.
Using a unique narrative approach, the book is infused with real-life stories from patients and caregivers about their experiences of acute or chronic illness. The stories highlight ways illness alters lives and shifts perspectives for individuals and families. They bring theoretical ideas to life by showing how individuals suffer when care is fragmented, when medical records are hard to obtain, when patients aren't welcomed as collaborators, when physicians are condescending or not empathetic,and when healthcare is both inconvenient and costly. Each story refers back to the transformational principles presented in the essays by highlighting key lessons for policy and practice.
Stories are powerful, and the essays and stories discussed within this book will stay with the reader for years to come,supporting and inspiring system change.
About the Author
Jan Oldenburg, FHIMSS is a nationally recognized thought leader on consumer health information strategy and patient engagement. Through her work with Ernst & Young, she helps organizations create and implement strategies related to patient/provider engagement and activation with a focus on digital health technology. Prior to her current role within EY's Advisory Practice, she was the Vice President of Patient and Provider Engagement in Accountable Care Solutions at Aetna, where she helped build patient and provider engagement programs for Accountable Care Organizations. Before that, Ms. Oldenburg was a senior leader in Kaiser Permanente's digital strategy group and a principal in several consulting companies focusing on strategies for using the digital technologies effectively in healthcare. She is the primary editor of Engage! Transforming Healthcare through Digital Patient Engagement, published by HIMSS in March, 2013 and received the Best Book award at HIMSS14. Currently, she is the Vice-Chair of National HIMSS Connected Consumer Workgroup. She is also a member of the Consumer Empowerment Workgroup of the Health IT Policy Committee of ONC. Associate Editor, Mary Griskewicz, MS, FHIMSS is the Director of Strategic Sales for HIMSS, HIMSS leads efforts to optimize health engagements and care outcomes using information technology. With more than 20 years’ experience in healthcare policy and clinical systems management, Griskewicz had led HIMSS ambulatory, clinical & business analytics, connected patient/consumer, payer and life sciences initiatives, including strategic, tactical and outreach activities. Before joining HIMSS, Griskewicz was the Director of Government and Industry Affairs for GE Healthcare’s Global Strategy and Health Information Services Division. She also served as the Director of Corporate Strategy and Business Development for IDX systems. She has held other management and consulting positions in the healthcare industry, working in healthcare in the provider (Yale New Haven’s St. Raphael Campus), payer (Anthem BCBC in CT, Aetna, CIGNA) and consulting settings. Griskewicz has authored many publications and speaks nationally on Health IT. She has received several industry awards, including the CHEST Physicians, Clinical Resource Center Education Award, HIMSS Leadership Award, Special Interest Group Award and Spirit of HIMSS Award. She has authored articles and federal legislation, as well as provided Congressional testimony on the adoption and use of health information technology. Griskewicz has a Master’s degree in Industrial Relations from the University of New Haven and a Bachelor’s degree in Political Science/Public Administration from Central Connecticut State University. She is also a HIMSS Fellow.
